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Good News, Bad News, Good News, Bad News....

Saturday, September 8, 2007
So, the good news is that I feel pretty good today. The bad news is that I feel good because I had to increase my Flolan. The good news is that I CAN increase my Flolan and feel better. The bad news is that this is a sign of the continued progression of the disease.
Over the last 5-7 days I have noticed an increase in heart palpitations and an increase in tiredness, especially when I would be up and moving. At first I figured I was still recovering from the "lovely" gallbladder surgery. But, last night I talked to Rod about it and we decided it would be a good "test" to increase the Flolan a little bit and see if I felt better. I changed my pump setting from a 79 to an 81 and within an hour I felt significantly better! I even slept better. The night before I had been up several times. I was just uncomfortable, with my breathing and some heart "blips." I woke up this morning also feeling better than I had for a few days. But, just to be sure, I bumped the pump down to 80 for a while this afternoon to see how I reacted. Sure enough, within an hour I started feeling crummy again. So, as Rod says, even though it's not a good sign, it is so much better to be able to feel better.
But, there is some REALLY GOOD NEWS today! My "baby" Chris is 24 years old today!! It is amazing that he is 24 and his beautiful mother is only 26! What a miracle!! Unfortunately he's in Chicago and I can't give him a real hug. But, he is having dinner with friends of our and they've promised to give him a real big bear hug for me!!
Thanks for reading.


3 comments to Good News, Bad News, Good News, Bad News....:

Jacqniel said...

You are right - good news, bad news....
It is miraculous how our children can age and we don't. I am certainly glad that is how it works!
Big hugs to you, beautiful.

Colleen said...

Happy Birthday to Chris!! And I know that adjusting the Flolan isn't the happiest thing, but hopefully the amount you're now getting will last a long long time before you have to adjust again! You know, this time of year with the seasons changing always makes me feel yucky, despite being on 2 meds now. Maybe that could be a reason for the needed increase?? Just a thought!
Colleen :)

Di said...

I always knew you were a special 26 year old lady!!! Happy day to your son.
Sorry to hear of the increase in Flolan but we will be praying that it does the trick and continues to make you feel much better for a v-e-r-y long time.
Praying for you sweet friend,
love ya, di