Seven weeks ago yesterday, I met with my family practice physician for my "yearly" physical. I had been having some trouble with Gi issues and increased tiredness that we both assumed were left over from a bad bout of flu in February along with typical Flolan side effects. But, to be thorough, she decided to take the time to do a complete physical so all types of blood tests, scans, collections, etc were done. All tests came back without any remarkable concerns.
Seven weeks ago today I did an exercize echo at the Med Center that showed that my PH was progressing. Rod and I had a discussion with my PH specialist about gathering information on getting registered for a lung transplant.
Three weeks ago today I met with GI specialist at the Med Center to discuss the increasing difficulty I was having with weakness, tiredness, vomitting and being unable to eat anything other than banana popsicles and chicken broth. It was decided that the following Thursday I would have an endoscope and colonostomy to try and determine the cause.
Two weeks ago today I was in the hospital. I missed the retirement party for two friends and the colonoscopy and endoscope were both cancelled due to the preliminary diagnosis of Addison's Disease.
One week ago today, I forgot it was my 51st birthday. My husband and sons sent me beautiful long stemmed red roses that I received at home in my pajamas from a floral delivery guy that will probably never stop at our door again.
One week ago today, I had a ct scan as a follow-up to the results of the last test that was done to determine if I did indeed have Addison's, and if so, if it was primary or secondary. Instead, I found out that I have Panhypopituitaryism which means that I have no pituitary. I found out that with the right balance of medicines I will begin to feel much better.
Today, I woke up, cooked myself toast and an egg for breakfast. I ate all of it. I cleaned up the kitchen including unloading and loading the dishwasher. I then went with my sister to visit Nick's condo to see how the new floor installation was going. I then went to lunch with my sister. I ordered Fettinicci Alfredo with some chicken on top. I ate some of it. I came home watched the recorded "All my Children," read a couple of chapters in a book and took a short rest. I also went to dinner with Rod, Nick and Chris and then went to see the opening night showing of the new Pirates of the Caribbean. I got home at 11:00 pm, mixed my Flolan medicine, switched cassettes, took my medicine and went to bed at 11:45 pm.
Seven weeks....a small fraction of time....a lifetime.....
"Dear Heavenly Father, I thank you for two special gifts that you have bestowed upon me....time and perspective....amen."
Much love,
Annette
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8 comments to Time and perspective....:
Seven weeks. I am sure it seems like a lifetime. You made my heart lighter just reading about your wonderfully normal day. Here is to everyday mundane activities. May we enjoy them for many years to come. Hugs, Jacque
As odd as it may sound, I think my fav part of this post was knowing that you were eating food!! Where exactly did you go for alfredo?? One of my favs! hehe Seriously, Annette, I'm so glad you are doing so much better! It's good to read your sense of humor again, here and on the PH boards. May your good days continue on!!
HUGS!
Colleen :)
Dear Annette,
As I am wiping tears from my eyes after reading your blog my heart is so full of JOY!!! Seven weeks.....what God can do in such a short time. It truly is the little things in life that make us happy.
We are praying daily for your continued improvement. Keep blogging, I love hearing from you.
Hugs, di
That was very powerful. I'm so glad to see you have energy back and are able to enjoy life once more. Keep up the great work. I thank God along with the wonderful word of medicine.
Much Love,
Linda
aka SoccerMom
Time, perspective, good drugs.
All good things.
And you're as old as my husband on my sister's birthday. There's something cosmic about that...
Boomer Sooner.
Annette, I wrote you a comment and then somehow deleted it! And I work on computers all day??? What a dork. Anyway, trying again...I want you to know that I am so glad you are able to be up and enjoying your wonderful life again. It was so good to see you the other day, when Mary brought you up to school. I MISS YOU!! Keep blogging, because your 'self' shines through your blogs. I love to read them. Thanks to your most recent one, I'll never look at loading the dishwasher the same again!! Keep getting better!
Christy B.
The library goddess (one of them)
What a gal this cousin of mine....this blog thing is wonderful...just know we're pulling for you...and hoping for more shirts to be ironed and dishes to be loaded...which means you're doing better... loves and hugs from both Paul and me...your cuz..Lee
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