Hello! My name is Annette Markin. I'm a 54 year old woman fighting a rare lung disease called, Pulmonary Arterial Hypertension. I was diagnosed on June 29, 2004 (my husband's birthday). On July 15th I began a treatment called, Flolan. It is administered continuously through a central line that has been surgically implanted in my chest by a portable, battery operated pump. I'm also on oxygen 24/7. As you can imagine, the disease and the medicine are a bit of a challenge. The love and support of my wonderful husband Rod (married 31 years and counting) and our two sons, Nick (28 and married to a beautiful woman named Kara and proud owner of a fat cat named Ivan) and Chris (26 a professional photographer with a goofy dog named Deoje)and other loving family members and friends make this fight less challenging. My faith in God provides me with hope for a cure for this now incurable disease. Please learn more about Pulmonary Hypertension at: www.phassociation.org
Annette - 24 degrees and snow here. Actually we were under a severe snow advisory - I went church to do some attendance folders. Spent all of 1 1/2hrs there, went to the store bought some food. Came home set up my webcam and put on PJ's.
As for slacks - I wear maternity - since I can't bend over my undies don't show. But with the maternity pants the legs fit great - and stretch room for the tummy. Love your blogs. Deb
Here is some additional information about the "genetics" of this condition that was written by our Genetic Counselor and other genetic professionals: http://www.accessdna.com/condition/Pulmonary_Arterial_Hypertension/318. I hope it helps. Thanks, AccessDNA
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53 comments to What does a woman with pulmonary hypertension do when the temperature is 24 degrees on December 3nd and it feels like 9 degrees?:
Sounds like a good day. I will however, be going for a manicure!
Annette - 24 degrees and snow here. Actually we were under a severe snow advisory - I went church to do some attendance folders. Spent all of 1 1/2hrs there, went to the store bought some food. Came home set up my webcam and put on PJ's.
As for slacks - I wear maternity - since I can't bend over my undies don't show. But with the maternity pants the legs fit great - and stretch room for the tummy. Love your blogs. Deb
Aaaaaaah, sounds like a nice day!!!
Oh yea..My kind of day even though it is much warmer here;)
Take care ..
Love & Hugs,
Jen
Here is some additional information about the "genetics" of this condition that was written by our Genetic Counselor and other genetic professionals: http://www.accessdna.com/condition/Pulmonary_Arterial_Hypertension/318. I hope it helps. Thanks, AccessDNA
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Friend: someone who likes you even after they know you.
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